Baby James

We wish we were writing this post with better news to share, but James’s echo yesterday showed significantly elevated lung pressures. This is the most significant risk factor that his cardiologist has been watching out for, so he decided that it is time to get the ball rolling on surgery number three. This surgery will be a mitral valve replacement. His heart is still very small and he is very young, but six months ago today we first heard the term heart failure. He was much younger and smaller at that time. So we have hope that the progress he has made will be enough.

Today we will be deciding which type of replacement to do, which hospital to do the surgery at, and which surgeon to do the surgery. Please pray that we will have clarity and peace with whatever we decide. James’s cardiologist has been extremely helpful and has provided us with a lot of information and support as we make these decisions. We are very thankful to have such a caring and involved doctor on James’s team.

Mitral valve replacements in babies are very rare, and there are only a couple dozen babies that have this type of surgery each year in the United States. We have spoken with other families who have been in our situation and some have children who are thriving, and some have required more surgeries and are not doing as well. We don’t know what path this next surgery will take us down but we know God will be with us, and with James.

Despite his circumstances he is still a happy boy. His favorite things right now is playing with toys, reading books, listening to The Happy Song, and learning to roll over. Our favorite thing is waking up to him smiling at us every morning.

Received: May 25, 2025

Ted

Pastor Ted”s update 4/29:

1. Thank you for your prayers! We are feeling God's grace and power as a result.

2. Surgery pre-op is Monday, May 5.

3. My surgery date is Wednesday, May 14, at 7:30am, at the City of Hope Duarte facility.

4. I will be in the hospital for 3-5 days following surgery.

5. Surgery may be moved up if there is a cancellation next week.

God is good!

Received: April 30, 2025

Anne's Mom

Prayer's please for mum, who is in the hospital with swollen legs. Prayers doctors are able to heal her and comfort all.

Received: April 30, 2025

Andrew

Assurance of salvation and salvation forgiveness and cleaning of sins, Healing for high cholesterol praise God Healing for voice and throat and lung health in Jesus name amen

Received: April 24, 2025

Ted

Thank you for your prayers and support! We were able to update my insurance, so City of Hope will be our formal care leaders in Duarte. We are waiting to schedule surgery, or chemo & surgery. Radiation is off the table for now. Happy Easter to all.

Received: April 16, 2025